Our Right to Remain

Welcome to Our Right to Remain. This site began with a simple Facebook conversation between two mothers in two different states wanting to do more.

The disability community in the United States has faced challenges since this nation’s founding. The challenges we face today are unprecedented in number and scope. Between Olmstead, Medicaid cuts, state changes to assessments, and the threat of institutionalization, the rights of those with disabilities are pressed on all sides.

My sweet son received HCBS waiver services through Medicaid for twenty years until his untimely passing on February 21, 2026. Over those twenty years, I learned to be his voice. Having a child with disabilities will necessarily, force us to find our own voices. Once we do, we are among the fiercest advocates. And our voices don’t stop because theirs did.

Here you will find information on current events in all different states across America as well as specific steps to take to help advocate for yourself or your loved one. Our hope is it will become a place to seek and offer information, connect, and collectively raise our voices.

We will be adding to the website several times a week, so please come back for the latest information.

Thank you for visiting us!

If comfortable, please leave a comment letting us know what state you are in. As we grow, my hope is to connect families to one another.